Wednesday, October 29, 2014

Fall Festivities


We spent last Saturday evening over at the cousin's roasting hot dogs and marshmallows and carving pumpkins. It was a beautiful Fall night to spend outside.

Simone...





Roxie...

Brett's pumpkin. He tweeted a picture of it in the hopes that Emirates would give us some free tickets for the coolest pumpkin ever. :) Didn't work.

 The pumpkins all lined up...

Jude and Mommy's pumpkin...

The kids all got to wear their costumes to church on Sunday. Jude the GI Joe, Roxie the Dalmatian, and Simone Minnie Mouse...









Jude's been wearing some of his GI Joe costume for days now. He will hardly take the mustache off...



Wednesday, October 22, 2014

Miracles

We are overwhelmed with thankfulness and God's grace today.
Nearly 2 years ago, we were given a small, grainy, black and white picture of an 11 month old little girl. Next to the picture we read, "Milu, 11 months old, Atrial Septal Defect." That's it, that's all we knew and with our whole hearts we said "Yes, she's ours! Let's do this!" We jumped in with both feet, not knowing what her future medical needs would really be. There was an incredible amount of information we did not have and there was an endless list of uncertainties. (Not to mention 2 months later we were told she had a twin sister. Ha!)
But here we are, just a few weeks away from that very moment 2 years ago.
We spent yesterday with an Orthopedic Surgeon to discuss their torsos and we spent all morning today with a Cardiologist. And from both doctors, we got a clean bill of health!! For real. So here's some details:

Yesterday the Orthopedist showed us how the girls' cartilage did not develop because of malnutrition (but that their bones had formed correctly at the sternum.) No braces or surgery needed! We just continue to pack their little bodies with whole foods and lots of activity and that cartilage will eventually repair. He wants to take a look at their torsos about every 2 years, but he thinks in about 10 years that cartilage will appear more "normal." He also mentioned that with more activity and nutrition their tummies would eventually not protrude as much as they do now and as a result cause their torso to not be as noticeable.

Today, in a dim lit room the Cardiologist showed us pictures of their hearts up on the echocardiogram. He pointed to the very thin white line of their Interatrial Septum where the hole had CLOSED UP. He explained to us that their hole not closing up shortly after birth was simply from severe malnutrition and dehydration. We've spent this last year dumping whole foods and lots of liquids down our little beauties and their bodies were finally able, for the first time, to start focusing on repair instead of mere survival. No more Atrial Septal Defect!! He said he would downgrade their condition to something called PFO. He told us to come back in 3 years just to have one more look. But he said if we forget to come back, we'd be fine! :) He was incredibly encouraging!

Isn't that CUH-RAZY?!! I'm just a sobbing mess of thankfulness and bewilderment today that all of these doctors are behind us in just 11 months home. We said, "yes" to Roxie Milu 2 years ago thinking doctors would be a constant in our lives and here we are: Done.
So what now? We go to the doctor when...we're uh... sick? I guess so!


And for the very long, and tedious, echocardiograms...



Monday, October 13, 2014


Pictures, pictures, pictures!


The mornings have been feeling like Fall, but the afternoons feel like Summer. So this is becoming our new routine: getting outside early, jammies, coffee, and scooters. And on this particular day meeting the hungry hungry caterpillar. ...And really missing New England. (Roxie left, Simone right.)

I was taking Roxie's picture but Jude and Simone came running into the photo for some attention too. (Simone left, Roxie right.)


We've gotten some great use out of our old shopping cart/laundry cart from NYC:

Roxie...

Jude dragged the sled out of the garage and said he was going to look at the leaves. So I told him about all the afternoons we spent together laying under the trees next to the beach in Beverly, MA.

Documenting one of our "Fall" afternoons by stopping Simone mid-play to view her sweaty hair.

Simone and Roxie got big girl beds last week! They had been sleeping in miniature cribs and they're feet were hanging out. We had reached our limit on those space savers!
They looove their new beds. (Simone left, Roxie right.)

Their first nap in the beds. Simone...

Roxie...

And we spent the weekend celebrating our other favorite twinnie, Betsy, at her magical wedding.

Sunday, October 5, 2014

Pumpkins

We spent Saturday morning in Porter, Oklahoma romping around a real pumpkin patch.
Despite the fact that Oklahoma seems to have a non-existant Fall, or just non-existent Fall foliage, we took advantage of the cool temps and enjoyed a hay ride, pumpkin patch, and miniature hay bale maze. 


Roxie attempting to pick her pumpkin...


Everyone agreed on the same pumpkin! Jude's advice on the drive to the farm was, "Do not touch the slimy pumpkins." We thought that was good advice. :)


Roxie insisted on being in charge of our little wagon...



Simone...



Simone...

Simone...

Jude and Roxie...